Seeing Clearly

Everything went great at the eye doctor yesterday. Once again Sarah was such a trooper. Between waiting to be seen and the whole appointment we were there for 3 hours. The doctor informed us that the health of her eye is fine. She is seeing fine and there is no damage that is affecting her in any way other than cosmetic. Basically he said that because of where the tumor was near her spine, it blocked some of the signals getting to her eye affecting some of the growth. Specifically, pupil size and muscles. So, the fact that her pupils are different sizes is permanent and the droopy eyelid is also permanent. We are rejoicing in the fact that there is nothing more serious wrong with her eye, and that if in the future she chooses to have her eyelid fixed, surgically that is certainly an option.

Sarah had an occupational therapy session yesterday and a physical therapy session today. Both went much better than last week. She is definitley not back to where we had seen her best growth, but definitley improved from last week. After being in contact with the doctor, we have decided to go up again on her steroid dose. In the doctor's words, "I want to maximize her recovery, and if she needs to be on a slow steroid taper to maximize her recovery, so be it. The main thing is to have her making progress in walking again like she was a few weeks ago -- regaining milestones and moving forward. I am glad that you have figured out how to get her to take the steroids. I think she needs this medicine." We totally trust him and thank God that this man is caring for our girlie.