Sarah loves her therapists. Its basically like a play time for her, with all kinds of new toys, puzzles and games. We had to get her some high top shoes for added stability for her ankles. The reason was that she may do some damage to her ankles in one of her attempts to walk because her legs are so unstable. We looked and looked for some shoes for her...and found out that high top shoes for 2 yr old girls aren't very common. Go figure. We FINALLY found some...the new Air Jordans come in purple and pink, AND in the size we wanted!! So much for #4 getting all the hand-me-downs. Now she gets to rock the new kicks.
This past week was another treatment week at Hopkins...both an IVIG injection and her chemo. The doctor decided to increase her steroids back to the full dose. We had started to decrease the amount...3.8mL, then to 1.8mL, then to 1.0mL. But because she has had a bit of a decline in progress, he wants her back up to 3.8mL, twice a day. We are praying that these drugs help her gain back the little bit of progress she had made.
The other night, Jen had a ladies meeting, so the kids and I had a little dance party in front of Sarah. She was laughing so hard, which is probably indicative of how stupid we probably looked. The song of choice for this particular dance party was "Turkish Delight" by DCB. My kids love that song! It was great to hear Sarah belly laugh. Other favorites include, Phil Joel's "When I Obey" and Kool and the Gangs "Celebration". Mikaela already told me that at her wedding, the song she wants to be our special dance is "Celebration".
7 comments:
isn't it good to see her laughing in the midst of all that is going on? kids tolerate these circumstances so much better than an adult would. livi loved cards that made music...once her family found out she had several, and loved to open them so that we would all start dancing. we had many dance parties also...we all loved them
love, gigi
Sarah has Air Jordans that's too awesome. :-)
Thanks for the updates-We're praying!
I have found it near breath taking and certainly tear jerking at times when God allows me to step back for a moment from the caring of my son to see how much God has graced him and is gracing him to respond to his trying circumstances. It is a wonder to behold for sure, and I just admire my little man so much for it while at the same time stand in awe of God for His grace on his life. It is wonderful to hear such similar reports from your home in regards to Sarah.
Continuing to pray for Sarah and all of you as you trust God to supply light for each next step.
Sweet girl! I love seeing her laugh!
What an awesome smile and laugh! Glad to hear you have amazing friends nearby and such cute children that love and entertain each other! We continue to pray for you! While at Disney over the weekend- I had you all on my mind and hoped that you'll still be able to make the trip in December! Thanks for all the updates! We love you guys!- Georgia, Mason and Ellie
I am so happy to hear that Sarah is doing so well. She is on a different treatment plan than my daughter, Eva, but I think of you and your family often.
By the way, we have dance parties every night in our house. The kids particularly love The Kung Fu Hustle.
-Kristi
Ohhh, a girl can never have too many cute shoes. And Sarah looks pretty spiffy in those Air Jordans!! Judy <><
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