At the end of last week, we started to notice a decline in Sarah's motor skills again. Until that point, we were noticing Sarah improving as she worked hard to regain some of the things she lost. Then we noticed a decline in the improvement...to the point where, on Friday, she was having a hard time sitting up. We contacted the doctor right away.
There is a strong possibility that this set back is a direct result from the reduction of steroids. Our doctor is involved in determining if this is the case. We are watching her decline and her steroid in-take to determine if this is in fact the cause.
Either way, it is still very difficult to watch. Our doctor told us to prepare for set backs like this, saying that "relapses" are to be expected, but it is still very hard to watch. Your hopes get so high after you see improvement, then you are forced to go back to square 1. Our souls are doing well, we are still trusting God. The temptation is to think that "there's a light at the end of the tunnel", an end to all of this that is right around the corner. However, the further we get into this, the more we realize that we are in this for the long haul. This isn't going away anytime soon. The more we realize this, the more we see our need for grace for today and today only. God promises to give us grace for today. We don't know what next week or next month will look like. The only thing we know is what is right in front of us, and God has met us with every step.
Yesterday, our friend (Matt Lowe) underwent brain surgery to remove a tumor. He is married with 5 kids, 1 on the way. When I was putting the kids to bed tonight, we prayed for Mr. Lowe and for his family. Mikaela started her prayer by saying, "Jesus, please heal Mr. Lowe and help Emma (his daughter) to not be scared, and please help them know that you are near to them and helping them."
What a wonderful prayer. That is our prayer for our family as well...that we know God is near to us and is helping us.
Dave
a day in the life of our family of six
4 comments:
I'm so sorry to hear you have seen a decline in her skills. We continue to pray for improvements in Sarah and strength for your family. Thank you for continuing to keep us up to date and share with us what prayers you need from us! With love- Georgia, Mason and Ellie.
That made me cry. We love you all and are continuing to pray for Sarah and for your whole family. Amen to your post. There is grace for today. Matt and I want you to know how thankful we are for you all and your example to us of faith in God during difficult circumstances.
Helen
Praying for you guys!
Our love and prayers are with you.
Truly, we only have this moment...and those who recognize what is good, even in the midst of great difficulty, are blessed beyond measure. You are indeed blessed beyond measure, with grace, faith and family. God's name be praised!
The Mohrs
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