Sarah

Sarah has been having some difficulty lately keeping her shakiness under control. It is most likely the result of her brief battle with the flu a couple weeks ago (that landed us in the hospital). We knew that any virus is a big deal for Sarah, and brings with it the potential for the OMA symptoms to come back more acutely. Our doctor is concerned about this, and is responding by increasing her steroid dosage for 1 week with an attempt to "knock out the bad immune system "clone" that is cross-reacting with her brain" (our doctor's words...not ours!).
So, we increased her steroids and are praying that her OMA symptoms start to dissipate. Yesterday, our good friend Kenneth Maresco initiated prayer for Sarah in our weekly pastor's prayer meeting. It made me freshly grateful to God for the gift of prayer and how that helps us know his nearness, and made me grateful for friends who hold my little girl up in prayer.

Here are some more pictures of Sarah!



I love this picture for many reasons. I took it with my phone while holding Sarah. This was taken in Shady Grove Hospital just minutes before the doctor came into our hospital room to give us the worst news any parent could hear ("the MRI shows that your daughter has a tumor"). So much is captured in this picture. We had no idea of how much our life was going to change just minutes later. We were all hanging out that morning, expecting to go home and resume life, not knowing that just a couple hours later, we'd be sitting at Johns Hopkins Hospital getting briefed on Sarah's surgery and treatment plans. At the point this picture was taken, we were completely unaware that this day was going to be one of the most difficult days of our lives.


Pictures of Sarah's 2nd birthday. Her love for ice cream hasn't subsided!


Beach picture from last month!